Photo: Courtesy Althea Grace
Even before she became a contestant onAmerican Idol, Althea Grace kept her dreams in sight.
But at 10 months old, Lennon started havingseizuresand was eventually diagnosed with tuberous sclerosis complex, arare disorderthat causes benign tumors and affects 1 in 6,000 newborns in the United States. Lennon’s condition triggered liver failure, which left her hovering near death until she was able to have a transplant atChildren’s Hospital Los Angelesjust before her first birthday in January 2020.
“When the doctors gave me Lennon’s diagnosis, I was terrified,” says Althea Grace, 22, who dropped her surname. “I had been taking Lennon on the road with me, but how could I continue that with all her medical needs?”
Courtesy Althea Grace
Through it all, she refused to leave music behind entirely. In the midst of COVID-19 restrictions and a 90-day hospital stay with Lennon, she tried out for American Idol Season 19.
Before she performed at the Hollywood auditions, Althea Grace brought attention to Lennon’s disorder during an emotional encounter with the judges.
John Fleenor/ABC
Visibly shaken, she told her story toKaty Perry,Lionel RichieandLuke Bryan. Adding to her stress that day was a call from her dad — he and her mom relocated to Los Angeles to help care for Lennon — telling her Lennon had to be taken to the emergency room after ripping out a feeding tube.
“I had never missed an appointment,” Althea Grace says. “I had never missed an emergency, so getting on that stage took everything in me.”
She remembers Perry’s motivating words: “Katy Perryhad told me that I needed to use what I was going through to put a fire under me,” she recalls. “It was a powerful moment for me to see how music got me through what was happening.”
It had quite an impact. “I read that and just bawled my eyes out,” says Althea Grace. “Because I had moments of questioning if I should just give up (my career) and stay home with my daughter.”
She says of all the things that came out of her brief “American Idol” experience — including a boost to her music career — the best was being given a platform to highlight the work of the TSC Alliance.
“The Alliance just create this beautiful network where everyone helps everyone else,” Althea Grace says. “They got me an appointment for Lennon with the head of the tuberous sclerosis department that I never knew even existed.”
And the group continued to provide support when Lennon went into liver failure in Los Angeles. She was only given a few days to live unless a donor could be found. Because so much of her liver was destroyed, she needed a deceased donor.
When a donor liver became available, Althea Grace says she experienced pure joy before she started sobbing.
For her, the worst time was when she confronted the doctors prior to Lennon’s transplant and asked for total honesty about the then-fragile child’s chances of recovery from surgery.
It was a long recovery for Lennon, but Althea Grace is grateful for the progress Lennon has made.
“She’s an absolute animal. She’s just the most wild, spunky, smart child I’ve ever met in my life.,” she says. “It’s miraculous that she was as sick as she was.”
From left: Children’s Hospital Los Angeles Transplant Hepatologist George Yanni, Lennon, Althea Grace, CHLA Pediatric Neurologist Vijay Vishwanath.Children’s Hospital Los Angeles
Lennon’s neurologist Dr. Vijay Vishwanath of Children’s Hospital Los Angeles credits both mom and daughter for her recovery.
“Every time I’ve met Althea she has a lot of questions and comes well-prepared. She’s shown a lot of courage through each step,” Vishwanath says. “Lennon’s got a lot of energy and she keeps the encounters pretty lively. She’s rambunctious and full of life.”
At her recent appointment at Children’s Hospital Los Angeles, Dr. George Yanni, Lennon’s transplant hepatologist, gave her kudos for providing essential support. In addition to Lennon’s tuberous sclerosis diagnosis, Yanni explained that Lennon requires complex post liver transplant care, including giving medication on time, providing a special diet, avoiding certain foods and reporting any unusual behavior or symptoms.
Coming up on Lennon’s third birthday, Althea Grace looks back and feels incredibly fortunate for her daughter’s survival, as well as for staying true to herself.
“I got to tour a little bit recently and at this point I know anything is possible,” she says. “I’m just in a state of reevaluating. Lennon getting sick was the biggest shift in priorities I’ve ever had. I took a lot of things for granted and now I realize what matters to me now is getting to spend as much time with her as I can.”
source: people.com
